The Speed of Dark

Here’s  a great article on kids, relatives, and holidays, focussing on the issue of forcing “respect” and “affection.”    Although I think teaching kids about boundaries and their right to say “No” to unwanted touch is important for all, it’s particularly important–and difficult–to think carefully and clearly about these issues with kids who have developmental differences.

Many people expect children to be available to be touched, hugged, kissed, and cuddled at will.   Strangers will pat a child on the head or shoulder and expect the child to accept the touch without complaint–even to smile at the stranger.   Relatives definitely expect a greeting and some sign of affection, and expect to be able to show their affection by touch.    That was certainly true in my husband’s family–my mother-in-law simply refused to believe that our son did not like her tickling his toes or hugging or kissing him.

As the article I linked to suggests, it’s important to have conversations about expectations from visiting family before they arrive.  Long before and repeatedly, if possible.     The more resistant they are to the boundaries parents set–and the boundaries the child might set–the more you might consider whether the visit is really a good idea.    Yes, families are important–but they can be important bad influences as well as good ones.    If they’re intent on doing things the parents know are hard to impossible for their child to handle…then they’re no better than any other person, stranger or not, who won’t respect boundaries.

Respect is a two-way street.    Kids  learn real respect from adults who show real respect to them–they learn respect as an interpersonal skill by example.    And that includes asking before touching, accepting that a child is not a toy to be played with as an adult pleases.    What they learn from adults who grab them, muss their hair, insist on hugging or kissing when the child doesn’t want to is not respect or affection but that even in the family they aren’t safe.

Advocating for a child is just as important within the family as outside.  Early on, I didn’t do enough of it–in part because my own background had not provided me with a good understanding of boundaries and my right to set them.

Some of us are old enough to remember the Pogo cartoon in which a character announced that he didn’t want “ups and downs”–he wanted “ups and upper ups.”  That’s certainly what parents want…kids who keep growing and developing.   When the general trend is upward, and about the typical speed of progression, the “downs” don’t bother parents as much.  But when a child develops more slowly…then the downs are much harder to live with.

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M- is now in his sixth week of living on his own in an apartment in the city.   I haven’t been to his apartment since week four;  R- has picked him up on Friday to come  up here for Friday night through Sunday morning, then R- takes him to church, and then ice-skating.   (The Sunday bus schedule makes it impossible for him to navigate apartment to church, or even count on a bus home from ice-skating.)  Last week, M- managed both legs of the afterschool trip to the ice rink and then home to his apartment.

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This is the start of M-‘s fourth week in his own apartment an hour away in the city.   Yesterday evening, I got email from him saying he had mail from the city, and was supposed to take something to the city offices and have a stamp, but he didn’t know where the city offices were and did not have a stamp in the apartment.   He had sent the email in the afternoon; I checked email after supper.  I phoned to ask him what the mail had been, and was prepared to guide him through whatever it was or deal with it on my Wednesday trip to to the city.   It took awhile to get clear what the mail had been about (note to self–still need more work on comprehension of questions and providing direct answers), but then came the marvel…a milestone indeed.

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Last Sunday,  M- left his keys up here (50 miles from where he now lives) and so after church he had to go to the apartment offices and be let in to pick up his spare keys.   Wednesday, when I was going to the city anyway, I took his keys down to him and tried to get his router hooked up properly.  Had to call for help from techie friends.    By then he had been two class two days.   Thursday,  I took him grocery shopping in the evening–wasn’t time on Wednesday, thanks to problems with router.    I often drive to the city two weekdays, once for voice lesson and choir, and once for fencing practice.  But it had rained, so the yard wasn’t good for fencing, and I did the grocery shopping with M- early enough that I was almost home by nine pm.  This morning, R- picked him up from the apartment to drive him to church.

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Sunday we moved the non-furniture stuff into M-‘s apartment.   A couple of trips up and down the stairs, and we were all glad someone else would be humping the bed, chairs, and big round table up there.

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All the furniture to be moved is now at M-‘s present address, ready for pickup Monday morning.

A few more boxes will be packed today.    SO glad we’re moving a twin bed and not a double!   I was able to get mattress and then box springs into the hall myself, while the guys moved the red chair from the old big van into M-‘s present address.   The bedframe had to go out through the window (very wide windows in front of this house) and no panes were broken.    It was a tricky maneuver, as the side rails of this bed do not come off with the tools we have, so the whole bed–with its headboard and footboard–had to be moved in one piece.   R- thought out how to do it and he was right.

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…also known as the last three months.   It’s been a roller-coaster, a whirligig, and a challenge in every dimension, but here we are facing the next with renewed excitement.

First there’s the college situation.   Our son did in fact have problems typical of autists in both the Transition to College and the Reading classes.   It’s worth examining these to see how his autism affected his understanding of (clear to most people) instructions.   He had been working willingly and consistently, so it wasn’t lack of motivation or laziness causing the difficulties.

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So after five weeks of classes, M- is still engaged and enthusiastic.   He’s managing the bus rides alone, using his cellphone to connect with us, and doing his homework both online and on paper.   We’ll find out next week or the one after, when grades are posted, how he did in the first part of the semester.   He started back to part-time work this week, two days, and says he’s keeping up with his homework.

He’s having some problems with the verbal part of one class that requires verbal class participation (he says he can’t tell when it’s his turn to speak and when he should stop–not surprising considering his speech difficulties) and I think his reading comprehension is still lagging.  But immense gains, nonetheless.

M- will have hours at his part-time job this week, in addition to his classes (first time he’s had work hours since December.)   He was missing his job (bussing tables at a pizza place) and thinks he can handle both.  His performance in the classes has been excellent so far, so…why not try it?  As he moves to more advanced classes, he may not be able to do it all, but now he’s in the groove with these. Read the rest of this entry »