The Speed of Dark

This is the start of M-‘s fourth week in his own apartment an hour away in the city.   Yesterday evening, I got email from him saying he had mail from the city, and was supposed to take something to the city offices and have a stamp, but he didn’t know where the city offices were and did not have a stamp in the apartment.   He had sent the email in the afternoon; I checked email after supper.  I phoned to ask him what the mail had been, and was prepared to guide him through whatever it was or deal with it on my Wednesday trip to to the city.   It took awhile to get clear what the mail had been about (note to self–still need more work on comprehension of questions and providing direct answers), but then came the marvel…a milestone indeed.

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It was all moving, actually.  One of us was down there every day (husband on Monday and Friday, me on Tuesday, Wednesday, Thursday) and M- came home Friday with husband for the weekend.   Or part of it.   Like many college students, he brought laundry to do at home (but he did it, not me.)   Read the rest of this entry »

All the furniture to be moved is now at M-‘s present address, ready for pickup Monday morning.

A few more boxes will be packed today.    SO glad we’re moving a twin bed and not a double!   I was able to get mattress and then box springs into the hall myself, while the guys moved the red chair from the old big van into M-‘s present address.   The bedframe had to go out through the window (very wide windows in front of this house) and no panes were broken.    It was a tricky maneuver, as the side rails of this bed do not come off with the tools we have, so the whole bed–with its headboard and footboard–had to be moved in one piece.   R- thought out how to do it and he was right.

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…also known as the last three months.   It’s been a roller-coaster, a whirligig, and a challenge in every dimension, but here we are facing the next with renewed excitement.

First there’s the college situation.   Our son did in fact have problems typical of autists in both the Transition to College and the Reading classes.   It’s worth examining these to see how his autism affected his understanding of (clear to most people) instructions.   He had been working willingly and consistently, so it wasn’t lack of motivation or laziness causing the difficulties.

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At the end of the first exam period–six full weeks of classes–our son took his first “big” exam, in the pre-algebra class.   Since he had work hours this week on several of the days exams were given,  he had to take the exam on a Saturday (not a usual class day.)     He said he felt prepared enough for it…and though students had an hour and forty minutes for it, he finished in 35 minutes with a score of 89.   If that had been the only triumph of the week, we’d all be delighted…but it wasn’t.

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Last week, M- soloed on Thursday and a wild Thursday it was.  Today was a completely different after-class schedule–two buses, but not the same two buses, all the way out of the city to the terminus at Leander.    We dropped him off, asked him to call when he got to campus, and again when he caught the second afternoon bus…or if he had a problem. Read the rest of this entry »

You’ve probably heard of this movie.   If not, or if, having heard of it, you had reservations about it (I did), here’s the good news: it’s better than you think.  It’s an incredible, brilliant movie that shows Temple Grandin’s triumph over both the problems autism gave her, and the society that did not have a clue and did not believe autistic people had a future.   And it shows the value of her life’s work, her designs for livestock management.  Because of her, half the livestock facilities in the world–not just here–handle their stock more humanely.  And–(yes, there’s more) it shows how she thinks–because it is a visual medium, a movie can show the pictures she thinks with. Read the rest of this entry »

When you have a child with disabilities–especially developmental disabilities, whether autism or something else–you want to do the absolute most for that child you can.    That child, you feel–or I felt–deserves–needs–a perfect parent.    That child, of all children, shouldn’t have to deal with parental imperfections–he has enough problems already.   He/she is so fragile, so vulnerable, that any mistakes parents make are likely to be the tipping point that makes it impossible for the child to have a happy life.

Then comes the day…you know the day.  The day you lose your temper.  The day you forget something vital.   The day you aren’t perfectly controlled, calm, supportive, firm enough and flexible enough,  diligent in getting through his/her therapies, the house isn’t clean enough, the vital paperwork goes missing.  That day.

Here’s the story of the day I contributed to stunting our son’s initiative.

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